| Abstract | Šećerna bolest kao jedan od vodećih problema današnjice u zadnje vrijeme se sve češće dijagnosticira kod djece.To je metabolička bolest gdje dolazi do oštećenja beta stanica gušterače koja ne izlučuje dovoljno inzulina ili ga izlučuje u nedostatnim količinama. Kao veoma kompleksna bolest predstavlja problematiku koja zahtijeva stalne inovacije u liječenju, samoj dijagnostici i provoĎenju edukacije. U današnje vrijeme djeca imaju ispunjeno i kvalitetno djetinjstvo, bez obzira na bolest koja ih prati doţivotno. Liječenje šećerne bolesti temelji se na principima doţivotnog apliciranja inzulina, samokontroli, tjelesnoj aktivnosti i pravilnoj i uravnoteţenoj prehrani. Edukacija od strane medicinskih sestara/tehničara i dalje je ona prva karika u cjelokupnom procesu pomoći roditeljima. Dobra kontrola bolesti znači i dobru kvalitetu ţivota djeteta.
Tijekom izrade rada provedeno je online istraţivanje pomoću anketnog upitnika koji je bio dobrovoljan i anoniman. Cilj ovog istraţivanja bio je identificirati kako šećerna bolest djeteta utječe na njih same i na roditelje, te kako ih prihvaća okolina. U istraţivanju je sudjelovalo je ukupno 175 roditelja. Sva djeca boluju od šećerne bolesti tip 1, dok 7.4% djece uz tip 1 boluje i od popratne autoimune bolesti. Odgovarajuću edukaciju o bolesti dobilo je 57.7% roditelja, a više od 50% bilo je spremno preuzeti brigu o djetetu bez pomoći medicinskog osoblja. Najviše negativnih odgovora odnosi se na vrtićki i školski kolektiv. Većina roditelja, njih 72% smatra da vrtići i škole nemaju dovoljno edukacije o šećernoj bolesti i kao takvi nemogu adekvatno brinuti o djetetu. Naţalost i dalje postoje vrtići i škole koji ne podrţavaju djecu s dijagnozom šećerne bolesti. Zahvaljujući današnjoj tehnologiji, više od 90% djece koristi moderne ureĎaje za kontroliranje glikemije. Time se poboljšava njihova kvaliteta ţivota, a dijete moţe ţivjeti svoje djetinjstvo kao i prije otkrivenog doţivotnog pratioca. |
| Abstract (english) | Diabetes, as one of the leading health issues of our age, is increasingly being diagnosed among children. It is a metabolic disease which develops with the dysfunction of beta cells of the pancreas, which is either not producing enough or any insulin. This very complex disease presents issues requiring constant innovation in treatment, the diagnosis itself, and the conduction of education. Nowadays the diagnosed children can have fulfilled and good-quality childhood, regardless of the lifelong disease. The treatment of diabetes is based on the principles of lifelong use of insulin, self-control, physical activity, and correct and balanced diet. The education from nurses is still the first link in the whole support process for parents. The good control of the illness equals to good quality life for the kid.
During the development of this paper, a voluntary and anonymous online survey was conducted. The goal of this paper is to understand the impact that diabetes has on children and their families, and how is the society accepting them. 175 parents participated in the survey. All of the children have type 1 diabetes, while 7,4% of children also have an accompanying autoimmune disease. 57,7% of parents received adequate education regarding the illness, and over 50% of parents were prepared to take care of their child without assistance of medical personnel. Most of the negative answers were related to kindergartens and schools. Most parents, 72% of them, think that schools and kindergartens do not have enough education about diabetes, and as such cannot provide adequate care. Unfortunately there are still kindergartens and schools that do not support the children with diabetes. Thanks to the contemporary technology, over 90% of children use modern devices to control blood sugar levels. This is improving their quality of life, and a child can live their childhood just as they did before the discovery of this lifelong companion. |
