| Abstract | Autoimune bolesti crijeva uključujući ulcerozni kolitis, Chronovu bolest i celijakiju, predstavljaju značajan izazov za bolesnike, ali i zdravstveno osoblje zbog svoje komplicirane etiologije i složenog tijeka bolesti. Ulcerozni kolitis se u nekim segmentima preklapa s Chronovom bolesti te se još stavljaju i pod zajednički naziv – upalne bolesti crijeva. Celijakija je bolest crijeva koju označava imunološka reakcija na gluten. Medicinske sestre imaju ključnu ulogu u pružanju holističke skrbi, a edukacija pacijenata zauzima važno mjesto. Ovaj završni rad istražuje važnost edukacije koju pružaju medicinske sestre u liječenju i svakodnevnom životu pacijenata oboljelih od autoimune bolesti crijeva. S obzirom da medicinske sestre provode najviše vremena s pacijentom, istraživanjem se htjelo pokazati koliko je vrijeme utrošeno na edukaciju.
Krajnji cilj bio je utvrditi provodi li edukaciju medicinska sestra, u kolikoj mjeri, koliko je zadovoljstvo pruženom edukacijom, te postoji li uopće potreba za edukacijom od strane medicinske sestre, s obzirom na liječnike, razne udruge, te dostupnosti informacija putem interneta. U istraživanju su sudjelovale osobe oboljele od Chronove bolesti, ulceroznog kolitisa i celijakije. Istraživanjem je obuhvaćeno 309 ispitanika, najviše s područja Hrvatske. Istraživanje je sadržavalo anketu u kojoj je postavljeno 31 pitanje. Svi upitnici su se popunjavali on line putem Google aplikacije, a ispitanici su regrutirani preko Facebook grupa za ulcerozni kolitis i Chronovu bolest te celijakiju, kao i preko udruga oboljelih, pretežno sa područja sjeverozapadne Hrvatske. Iz rezultata istraživanja može se zaključiti da ispitanici imaju relativno visoko slaganje u vezi toga da je medicinska sestra bitna za davanje informacija pacijentima o bolestima. Ispitanici oboljeli od autoimunih bolesti crijeva iskazali su niže zadovoljstvo pruženim informacijama o bolesti od strane medicinske sestre. Stoga se može uvidjeti važnost kontinuirane edukacije od strane medicinske sestre kao i potrebu za stalnim usavršavanjem medicinskih sestara kako bi osigurale optimalnu podršku i skrb za obolje od autoimunih bolesti crijeva. |
| Abstract (english) | Autoimmune intestinal diseases, including ulcerative colitis, Crohn's disease, and celiac disease, represent a significant challenge for patients as well as health care personnel due to their complicated etiology and complex course of the disease. In some segments, ulcerative colitis overlaps with Crohn's disease, and they are also referred to under the common name - inflammatory bowel disease. Celiac disease is an intestinal disease marked by an immune reaction to gluten. Nurses play a key role in providing holistic care, and patient education plays an important role. This final paper explores the importance of education provided by nurses in the treatment and daily life of patients with autoimmune bowel disease. Considering that nurses spend the most time with the patient, the research wanted to show how much time was spent on education.
The ultimate goal was to determine whether education is carried out by nurses, to what extent, how satisfied they are with the education provided, and whether there is any need for education by nurses, considering doctors, various associations, and the availability of information via the Internet. People suffering from Crohn's disease, ulcerative colitis and celiac disease participated in the research. The survey included 309 respondents, mostly from Croatia. The research included a survey in which 31 questions were asked. All questionnaires were filled out online through the Google application, and respondents were recruited through Facebook groups for ulcerative colitis and Crohn's disease and celiac disease, as well as through associations of patients, mostly from the area of northwestern Croatia. From the results of the research, it can be concluded that the respondents have a relatively high level of agreement regarding the fact that nurses are essential for providing information to patients about diseases. Respondents suffering from autoimmune bowel diseases expressed lower satisfaction with the information provided about the disease by the nurse. Therefore, one can see the importance of continuous education by nurses as well as the need for continuous training of nurses in order to provide optimal support and care for patients with autoimmune intestinal diseases. |
