Title Kvaliteta života bolesnika oboljelih od upalnih bolesti crijeva Title (english) Quality of life in patients with inflammatory bowel diseases Author Sara Kozina Mentor Melita Sajko (mentor)Committee member Zoran Peršec (predsjednik povjerenstva)Committee member Melita Sajko (član povjerenstva)Committee member Vesna Sertić (član povjerenstva) Granter University North Defense date and country 2018-09-19, Croatia Scientific / art field, BIOMEDICINE AND HEALTHCARE Abstract Upalne bolesti crijeva u koje spadaju Crohnova bolest i ulcerozni kolitis, jesu idiopatske, inflamatorne, kronične bolesti gastrointestinalnog sustava nepredvidiva tijeka, koje se razlikuju prema stupnju zahvaćenosti gastrointestinalnog sustava i značajkama upale. Incidencija upalnih bolesti crijeva u svijetu zadnjih desetljeća raste, a taj podatak ilustrira istraživanje provedeno u Hrvatskoj s podatkom o incidenciji za UC koja iznosi 4,3/100 000, a za CB 7,0/100 000 stanovnika. Povećana
... More učestalost upalnih bolesti crijeva kao i kronični tijek sa čestim egzacerbacijama, ograničavajući simptomi, trajna primjena lijekova te česte komplikacije imaju snažan utjecaj na kvalitetu života bolesnika. S ciljem da se ispita kvaliteta života te najčešći problemi i simptomi bolesnika oboljelih od upalnih bolesti crijeva provedeno je istraživanje u kojem je sudjelovalo 193 ispitanika sa potvrđenom dijagnozom ulceroznog kolitisa i Crohnove bolesti. Instrument istraživanja bio je anketni upitnik koji se sastojao od 19 pitanja te je bio proveden među udrugama oboljelim od upalnih bolesti crijeva. Na temelju obrađenih podataka proizlazi da većina ispitanika potvrđuje činjenicu da simptomi bolesti utječu na njihove svakodnevne aktivnosti i obaveze i to u 57 % slučajeva. Kao najčešći simptom od kojeg većina ispitanika pati navode proljev, zatim u nešto manjim postocima navode umor, bolove i grčeve u trbuhu, nadutost, lažne pozive na defekaciju, gubitak tjelesne težine, razdražljivost, krv u stolici te mučninu i povraćanje. Zbog nepredvidivosti bolesti i nemogućnost utjecaja na istu, često nisu bili u mogućnosti pohađati školu ili ići na posao, a isto tako u više od polovice ispitanika narušen je društveni život, kao i ponekad intimni život. Kao najveći problem unutar zdravstvenog sustava navode predugo čekanje na preglede i pretrage, a kod postavljanja dijagnoze najteže im je prihvatiti bolest i činjenicu da je to kronična bolest. Istraživanjem je potvrđeno da su ispitanici najviše informacija dobili samoinicijativno pretražujući internet, njih 55,4 %, stoga je važno je naglasiti potrebu za multidisciplinarnim pristupom i većom edukacijom oboljelih od strane zdravstvenih djelatnika, posebno medicinskih sestara koje najviše vremena provode sa oboljelima nakon postavljanja dijagnoze kad je razina motivacije za učenjem najizraženija. Adekvatnom edukacijom, podrškom i pristupom oboljelima učinkovitije bi se moglo djelovati na simptome, komplikacije, isto tako i na poboljšanje i održavanje kvalitete života oboljelih osoba. Less Abstract (english) Inflammatory bowel disease, which includes Crohn's disease and ulcerative colitis, is an idiopathic, inflammatory, chronic disease of the gastrointestinal tract with an unpredictable rate, which differs in the area of the gastrointestinal tract that is affected, as well as in the characteristics of the inflammation. A research conducted in Croatia, showing that the incidence of UC is 4,3/100 000 and of CD 7,0/100 000 population, illustrates that the incidence of inflammatory bowel
... More disease in the world has been on the increase for the last decades. The increase in incidence, a chronic course with frequent exacerbations, limiting symptoms, long-term use of medication and common complications, have great impact on life quality of patients. The aim of this study was to examine life quality of patients suffering from inflammatory bowel disease, along with their most frequent problems and symptoms. A group of 193 subjects with a confirmed diagnosis of ulcerative colitis and Crohn's disease, gathered from different associations, were given a questionnaire containing 19 questions. Results of the survey showed that the majority of subjects (57%) agree with a statement that symptoms of their disease affect their everyday life. The subjects reported diarrhea as their most common symptom, followed by fatigue, stomach pain and spasms, weight loss, irritability, blood in stool, nausea and vomiting. Due to the unpredictability of their disease and their helplessness, the subjects were often unable to attend school or work, and more than half of them had their social, or even intimate, life disrupted. They state that the biggest problem in health care system is waiting for medical examination for too long and that they, when it comes to diagnosis, have a hard time accepting the fact that their disease is chronic. The results also confirm that patients acquire information mostly by searching the Internet (55,4%). This emphasizes the need for a multidisciplinary approach and a greater patient education conducted by health workers, especially nurses, considering that they are the ones who spend the most time with patients after their diagnosis, when the level of their motivation to learn is the highest. Adequate education, support and approach to the patients, might help to deal with symptoms and complications more efficiently, and to improve and sustain the quality of patients' lives. Less Keywords
upalne bolesti crijeva
istraživanje o kvaliteti života
edukacija
medicinska sestra
Keywords (english)
inflammatory bowel disease
life quality research
education
nurse
Language croatian URN:NBN urn:nbn:hr:122:162276 Study programme Title: Nursing Type of resource Text File origin Born digital Access conditions Open access Terms of use Created on 2018-10-23 10:17:35
